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What is auti-gender?

We ask if autistic people are more gender fluid

Blogger Neurodivergent Rebel explores why sex and gender are big topics in the autistic community, and talks about the two metaphorical closets they had to 鈥渃ome out鈥 of.

Listener Madge has advice for young autistic people starting their gender journey.

And ... it's the third lockdown everyone. Jamie hopes never to need a Covid test as "sticking a long thing in his nose" might stop him speaking for weeks. Robyn, who has been tested twice, helps out with a big dose of reassurance and explains how she handles the unpleasant feelings.

With Robyn Stewart and Jamie Knight. Produced by Emma Tracey.

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Transcript

This is a full transcript of 1800 Seconds on Autism: What is auti-gender?, as first broadcast on 28th January 2021. Presented by Robyn Steward and Jamie Knight.

[Jingle: 1800 Seconds on Autism. With Robyn Steward and Jamie Knight]

JAMIE - I鈥檓 dressed as Tigger today and it鈥檚 the microphone bouncing off of the buttons on my onesie.

[Music]

CHRISTA - When I was a little kid I would sleep under the cushions, like, in the couch, to have that pressure on me and just pile all the toys on top or just pile anything on. It just feels so good.

[Music]

MADGE - I love the concept of auti-gender, I think that鈥檚 brilliant, 鈥榗os I do feel kind of in between the genders.

[Music]

ROBYN - Positive flapping over here.

[Music]

JAMIE - It鈥檚 the podcast that makes you think about how you think. I鈥檓 Jamie Knight.

ROBYN - And I鈥檓 Robyn Steward. We鈥檙e half way through series three, can you believe it? Well, I can because I鈥檝e been doing it. Anyway, we鈥檙e still recording from home with the support of our support animals, humans, microphones, chocolates, and Emma, our producer.

EMMA - Hello.

ROBYN - And of course, your emails. Please keep them coming, to stim@bbc.co.uk.

JAMIE - The UK is, once again, in a lockdown. In this episode we鈥檒l be discussing COVID-19 testing, and we鈥檙e also going to talk to autistic YouTuber, Neurodivergent Rebel, who鈥檒l be explaining what auti-gender is. Stay tuned.

ROBYN - How are you coping in this third lockdown, Jamie?

JAMIE - Er鈥 So far, so okay I guess? We had our first instance of somebody very close to us needing a test because they thought they were infectious, and frustratingly, or alarmingly, it was one of the support people. So, because they鈥檇 been here a couple of days before they went for their test and then they were feeling ill we had to isolate suddenly, as if somebody had returned a positive test. In the end the test ended up being negative, but it was definitely a couple of days where I couldn鈥檛 really make any plans about my life and that turned out to be very poor for my mental health, let鈥檚 put it that way.

EMMA - There鈥檚 a really strange noise. Is anybody else hearing that, it鈥檚 like a鈥

ROBYN - Yeah, clicking.

JAMIE - That one? [Clicking]

ROBYN - Oh!

JAMIE - That鈥檚 a button on my鈥 I鈥檓 dressed as Tigger today.

ROBYN - Stop pressing it please!

JAMIE - Sorry. I鈥檓 dressed as Tigger today and it鈥檚 the microphone bouncing off of the buttons on my onesie.

EMMA - I think that might be the best excuse I鈥檝e ever heard.

ROBYN - You mentioned your mental health, Jamie. If you鈥檙e comfortable would you tell us about it?

JAMIE - Sure. I鈥檓 talking to friends. I didn鈥檛 have my normal routine for about four weeks, five weeks, and one of the ways that that affects me is I have less energy, so I鈥檝e got basically nothing done, 鈥榗os anything I touch I tend to break because I鈥檓 really tired all the time. So I haven鈥檛 built bikes, I haven鈥檛 done any coding or anything, 鈥榗os I just make so many mistakes. And that, plus being always tired, tends to let the depression build up a little bit.

And the way it tends to affect me the most is when I wake up in the morning I find it incredibly hard to be positive. And it takes, you know, 45 minutes to an hour for that positivity to kick in. And on the two days or the day and a half where we were waiting for the COVID test that depression didn鈥檛 clear, in fact it got worse as the day went on, which wasn鈥檛 the response I was expecting and was a little bit alarming.

I was already quite low when we found out it was negative, but then also the speed at which it sprung back the very next day, like yesterday when we went to go for a bike ride that had been cancelled three times, postponed twice, and we finally made it out to this soggy, wet, damp forest. I was the wettest, dampest thing in the forest with the biggest smile. It was just brilliant, because it was finally getting outside, finally having a sense that I had some sort of control over what I did with my life.

ROBYN - What is it that concerns you about getting a test?

JAMIE - I鈥檒l be consenting to it, obviously, but it is quite a violation of, like, sensory stuff and bodily autonomy, so to speak. The worry is that if we go for the test it鈥檚 probably going to knock out my speech. Even going to the dentist tends to affect my speech for a couple of days, or I have much more difficulty communicating. Combine difficulty communicating with a generally depressive mood and a lack of energy and it could take literally weeks to recover. If everybody around me is positive then I need to isolate regardless because I鈥檓 in a household bubble with someone who鈥檚 positive. So actually doing the test doesn鈥檛 benefit us in any way, the only benefit I guess is the government get an extra one digit on their number, but the numbers are in the tens of thousands so that鈥檚 not a significant thing anyway. So it鈥檚 kind of weighing up the personal ramifications versus the benefit. Does that make sense?

ROBYN - Yeah, but what about if you did the test at home?

JAMIE - It鈥檚 the nature of the test that鈥檚 the problem. Sticking long things into my body. The likelihood that I will be able to put something long in my nose without it horrifically affecting my speech is very low and we don鈥檛 want to find out whether that means that I鈥檓 fine and I鈥檓 verbal an hour later, or whether it means that I don鈥檛 have any speech for three weeks. It鈥檚 not worth us finding out. You鈥檝e mentioned before that you鈥檝e had multiple tests. Could you, like, tell us about those and kind of why they happened?

ROBYN - Yeah, so I went to hospital with probably COVID in April but I wasn鈥檛 able to get a test then. Then I had what I now know to be long COVID but I thought was a relapse in June, so I had one then, and then I had a bit of a temperature in September and it was around the time I was supposed to have a blood test so I had one then. So I鈥檝e had two.

JAMIE - That makes a lot of sense.

ROBYN - Oh, and then I had a blood test for the antibodies.

JAMIE - Okay. How have you found the tests? Have they always gone smoothly? How do you find the sensory side of it?

ROBYN - That鈥檚 a good question. I don鈥檛 really like it, and I don鈥檛 think I鈥檓 very good at it, but it doesn鈥檛 last for very long. The biggest thing is, I wish I鈥檇 understood that the gagging thing is going to be really unpleasant and you just have to think about something else while you do that for a few seconds.

JAMIE - Hearing from another autistic person who has had that experience and can say, 鈥淚t鈥檚 unpleasant but I鈥檝e done it multiple times,鈥 is really reassuring, so thanks for telling us about that.

ROBYN - You鈥檙e welcome. I鈥檝e talked to my doctor about that because, like, as a woman I have to have a cervical smear every three years, and that鈥檚 really unpleasant. Like, that is a lot worse than the COVID test, and I have to do it to make sure I don鈥檛 have cancer and I hate it. When I have something like that coming up the doctor gives me medication and it helps me relax. And I find that that sorts it out because it dampens down my responses and so I鈥檓 sort of less bothered.

JAMIE - The sensory thing seems to be not related to anxiety or stress, it just seems to be like when there鈥檚 a big sensory thing, whichever part of my brain that is normally a little bit fragile for language just gets blown away and takes time to come back.

ROBYN - I think it probably was COVID, I鈥檝e never had anything like that before. And I definitely have all the, you know, a lot of the common long COVID symptoms like dizziness, the fatigue, oxygen saturation levels that bounce up and down quite a lot. Now that kind of seems fairly stable now, but for ages it was like that and sometimes I would just have to stop work because I鈥檇 be dizzy and need to take time off. So I think it鈥檚 very likely that I had COVID and it certainly fits with鈥

JAMIE - I think that鈥檚 the first time we鈥檝e discussed that, like, on the recording, and I鈥檓 really sorry to hear that and hopefully we can help support you with that. It鈥檚 kind of terrifying.

[Jingle] Send any questions or thoughts to stim@bbc.co.uk

JAMIE - Something that a lot of people have asked us about relates to gender identity in autism, so when we saw a recent YouTube video from the blogger known as Neurodivergent Rebel explaining something called auti-gender, more on that in a second, we asked them to join us for a chat.

ROBYN - Neurodivergent Rebel is also known as Christa Holmans. Have I pronounced that right?

CHRISTA - Yes.

ROBYN - An autistic self-advocate from Texas. Hi Christa, thanks for joining us on the podcast. Apparently, I鈥檓 immediately distracted by the bio on your blog which says you live in an RV. [Laughter] I鈥檓 not at all distracted by that, but it鈥檚 an interesting fact. RV stands for recreational vehicle.

JAMIE - Camper van in the UK.

ROBYN - And I鈥檓 sure that Jamie in particular would love to know about it, because Jamie likes things with wheels.

JAMIE - I have many, many, many thoughts about building little self-contained small living spaces, inspired by battleships and submarines and stuff like that, but I should probably park that special interest for another day and talk to you about it another time. But yeah, small living, portable RV stuff, that鈥檚 very interesting to me.

CHRISTA - I love it. Living the dream.

JAMIE - Yeah, it sounds it. Do you move around in the RV or do you kind of stay mostly in one place?

CHRISTA - We moved around a lot more before COVID and everything else of course, and now we don鈥檛 really travel very much because, you know, there鈥檚 a peak over here where it鈥檚 getting kind of bad, so we鈥檙e trying to stay in one place. But it鈥檚 a good life for social distancing, we鈥檝e been social distancing long before COVID was a thing because it was just kind of the lifestyle. We鈥檇 go park in the middle of the woods or somewhere beautiful and be away from people and in nature, which is my happy place.

JAMIE - You used the phrase, 鈥榳e鈥 there, so is there somebody else with you in the RV or is it a cat?

CHRISTA - Yeah. Well there鈥檚 four dogs and then my partner lives with me as well.

JAMIE - Wow.

CHRISTA - It鈥檚 a full house. It鈥檚 a bus, it鈥檚 a forty foot long bus, it鈥檚 about the size of a city bus. It鈥檚 a large one. We鈥檇 go smaller if we didn鈥檛 have four dogs, but they needed room to be able to kind of run around and play. So maybe someday we鈥檒l do a van.

ROBYN - Is it an old school bus?

CHRISTA - No, I wish, that would be cool. No, we bought an older luxury coach and it needs a lot of work, but that鈥檚 why we bought it.

JAMIE - How does that intersect with being autistic and gender?

CHRISTA - Oh, yeah.

JAMIE - Is there a story there?

CHRISTA - Really it relates to living a more affordable lifestyle and living minimally. I think if anything, as an autistic person, a lot of us are either underemployed or unemployed or maybe for whatever reason we can鈥檛 physically handle a forty hour work week, or sometimes people expect you to work 50, 60 hours a week, and some of us can鈥檛 handle that anymore, and I could handle it a lot better when I was younger than I can now. But it allows us to live with a lot less.

We had a house at one point and people call their houses a money pit, right? There鈥檚 always something in the house, and so now we don鈥檛 have a house payment because we have the bus. And we鈥檝e got a bus that always needs work but it鈥檚 also, as a neurodivergent person, a lot easier to keep track of. I don鈥檛 have as many things to keep track of. My space is much smaller, so when I do need to clean up I can clean it up by myself fairly quickly from a little 40 foot nose to tail area. I just swipe front to back, it keeps it really simple. So my life has been simplified.

JAMIE - Our listeners will want to know, [whispers] and I want to know too, what make and model of bus do you have?

CHRISTA - Yeah, so it鈥檚 a 2004 Country Coach, Allure I think? I hope that鈥檚 correct, off the top of my head. We like our bus.

JAMIE - Well, I know what I鈥檓 googling at the end of this recording. So moving on to the actual script. You started up Ask Autistics which is a hashtag that invites questions about autism from people who aren鈥檛 autistic. Could you tell us a little bit about the questions that people have been asking? Is there anything that鈥檚 been surprising? Anything that鈥檚 made you laugh or anything that鈥檚 made you cry?

CHRISTA - You know, some of my favourite things are when you see a good question, regardless of what the question is, and people start talking and they鈥檙e like, 鈥淥h my gosh, I thought I was the only one,鈥 and they realise how much they have in common on a lot of the different things. Or sometimes they are the only one and it鈥檚 like everyone else has one experience and they鈥檙e going, 鈥淥h, that鈥檚 not what it鈥檚 like for me, that鈥檚 somewhere I鈥檓 different.鈥 It鈥檚 fun. Like I think recently we had a conversation and we were talking about, you know, there鈥檚 a myth that autistic people aren鈥檛 sexual beings, and it鈥檚 like, oh that鈥檚 not true, you know, we have sex, that鈥檚 where a lot of autistic kids come from, you know. [laughs] So it鈥檚 kind of fun to see these conversations happening because we鈥檙e humans like everybody else, you know.

JAMIE - The infantilising鈥 Yes.

CHRISTA - Yeah, it鈥檚 gross, it鈥檚 creepy.

JAMIE - I鈥檓 never verbal around the social worker. I have periods of my life where I鈥檝e gone years with no speech where nobody in my life knows I鈥檓 verbal, so they tend to often assume very infantilising things. So when I鈥檓 with someone like a social worker or I鈥檓 really stressed so I鈥檓 using assisted technology to communicate, I鈥檓 communicating through my laptop, and we were doing a care review via AAC and it came onto sex, in the forms like sex and relationships. And she went, 鈥淥h, we can skip this,鈥 and I started typing away and her face fell through the floor, 鈥榗os she was obviously expecting me to be making safeguard reviews and all sorts of stuff. And then when I finally showed it to her it was something along the lines of I enjoy that very much and I鈥檓 not willing to tell you about it. [laughter] It was great, brilliant.

But anyway. Ask Autistics, I follow that as well, and I鈥檇 encourage anybody listening, it鈥檚 a useful place to see different conversations. You were saying about how people sometimes have their own experience or the exact opposite. I find it interesting how often in the autistic community the exact same thing, like a sensory response, can be equally strong in both directions.

CHRISTA - Oh, yeah.

JAMIE - So I know some people who cannot tolerate heavy blankets in the slightest, their blankets have to be as light as possible because they hate the feeling of pressure, and then I know other people like myself where, to be honest, if a dump truck just reversed over me at bedtime I鈥檇 be pretty happy.

CHRISTA - Oh, yeah.

JAMIE - I鈥檇 go out very blissfully.

EMMA - Christa, that was an interesting reaction to Jamie saying he鈥檇 be quite happy if a dump truck rolled over him so that he could go to sleep. Why have you had that reaction?

CHRISTA - Oh my gosh. I love my, like, weighted blanket and my heavy blankets. When I was a little kid I would sleep under the couch cushions, like in the couch, to have that pressure on me and just pile all the toys on top, or just pile anything on. It just feels so good.

JAMIE - It鈥檚 just so nice to be squished. But one of the downsides, I have like an inflatable squish jacket鈥

CHRISTA - Oh! I鈥檓 going to google that.

JAMIE - Wonderful things. Although if you run it at the absolute highest pressure, as tight as it will go, and you鈥檙e wearing one that鈥檚 one size too small it will leave bruises. Wonderful, wonderful bruises. But it will leave bruises so, you know, warning.

EMMA - I would hate that. I would hate that, it sounds awful.

JAMIE - It鈥檚 the sort of thing where as you breathe in you can suddenly feel all of your body as all of the pressure builds up. It鈥檚 great. But don鈥檛 breathe in too far, otherwise, you know, it hurts a lot.

EMMA - What do you mean, you can feel all of your body?

JAMIE - I don鈥檛 know, you kind of breathe in and you know where your edge is. So I have this thing where I kind of walk around feeling like a big floaty cloud of Jamie and I then bump into things, because oh, I鈥檝e got a bit of body over there, I didn鈥檛 know that, what鈥檚 it doing over there, but when I鈥檓 kind of all squished together or I鈥檓 wearing鈥 It鈥檚 one of the reasons I like my mountain bike clothing. I鈥檝e just realised, I could wear my mountain bike clothing when I鈥檓 not mountain biking. How come that鈥檚 never occurred to me before? Anyway. I鈥檝e got this, like, riding top that鈥檚 really tight and when I put it on it鈥檚 like suddenly I have arms. And then when I take it off again I go back to being the amorphous floaty cloud of Jamie.

ROBYN - Moving on to why we invited you onto the podcast, gender and identity.聽 I was watching your video, Auti-gender, and I found it really interesting. I think you articulated something that possibly a lot of autistic people would identify with, and I just wondered if you could tell us what the term auti-gender means and why it鈥檚 important to you?

CHRISTA - Yeah, so auti-gender is understood with the context of when you鈥檙e autistic and that greatly impacting how you experience gender. And so I want to be really clear with this that it鈥檚 not autism as a gender, but it鈥檚 rather the fact that you can鈥檛 separate being autistic from who you are and how you experience the world, and gender is another part of that and some of us feel like we can鈥檛 really unlink that, that being autistic heavily influences our experience of gender. And, you know, not every autistic person may experience this, but a lot of autistic people I鈥檝e found do and鈥

JAMIE - If there is auti-gender does that imply NT gender and ADHD gender? Or could it be described as a combination of neurotype and your experience with gender, but actually the actual neurotype isn鈥檛 important, it鈥檚 recognising that the two are interlinked that鈥檚 the important bit?

CHRISTA - There鈥檚 the term neurogender which is a whole other term, and neuroqueer, where it鈥檚 saying being neurodivergent influences your experience of gender. And I think that鈥檚 a wider umbrella and auti-gender鈥檚 kind of just a more specific piece of that.

JAMIE - That makes a lot of sense.

CHRISTA - Because I think being neurodivergent is definitely going to impact our experience of gender, because a lot of us, with autistic people we鈥檙e literally defined by the way we kind of don鈥檛 fit as neatly into society鈥檚 little checkboxes. And so, like, we know gender is a social construct, so it鈥檚 just another one of those areas in which many autistic people don鈥檛 necessarily fit.

JAMIE - It makes sense. I don鈥檛 think I鈥檝e talked about this on the podcast before, awooga, awooga, I generally don鈥檛 like gendered clothing. I don鈥檛 understand why boys shouldn鈥檛 wear skirts, and I own skirts. I don鈥檛 necessarily wear them outside, because socially complicated, but as a kid I was like, well why couldn鈥檛 I wear a skirt to school? It looks really comfy, really breezy.

CHRISTA - We鈥檝e had people, like you said, who don鈥檛 even think of these issues, sexuality and gender and all these things, because we鈥檙e infantilised all the time and so there isn鈥檛 a lot of conversation happening about this because of that.

JAMIE - When I first came out as gay and started having a boyfriend, I was at college at the time, and college in the UK is post 16 education, so that鈥檚 16 or 17, and essentially all of the grownups to me went, 鈥淥h, that鈥檚 brilliant, Jamie, who鈥檚 the lucky person?鈥 kind of pat on the back, pat on the back. And then, like, 鈥淲e鈥檝e just got to pop out for a moment,鈥 and they went and found my boyfriend, Jimmy and were like, 鈥淎re you serious with Jamie? What is this? Is this a con?鈥 you know, and he basically got it from every single adult in his life going, 鈥淎re you really dating an autistic person? You know, there must be an ulterior motive to this.鈥 And he was like, 鈥淣o, I just like hanging out with him.鈥 They were like, 鈥淗mm, suspicious.鈥 So that infantilising can be鈥 It鈥檚 well meant but can be quite corrosive.

CHRISTA - Hmm-hmm.

ROBYN - So, Christa, can you tell me about how you got interested in gender and also maybe a bit about how the way you thought about your own gender evolved?

CHRISTA - Yeah. Well, I think growing up I didn鈥檛 really know there were other options, but I felt like a lot of, quote, gender, was annoying to me. I was like, why is it girls can鈥檛 do this? Why is it boys can鈥檛 do this? You know, all of it just really frustrated me. I just never felt like I was a little girl, and I never felt like I was a boy either. And finally being able to fully embrace that as an adult has let me have freedom, because I鈥檝e never liked living in closets and I don鈥檛 think it鈥檚 healthy to do so. And I鈥檓 someone who values the truth and I prefer honesty, and being untrue to myself really is something that I find personally soul crushing. And I came out of the closet the first time in middle school when I took my first girlfriend to a school dance and years later when I was diagnosed autistic I started coming out of another closet, the autism closet, and surprisingly that was actually quite similar to coming out.

JAMIE - Can I make a joke that I made on stage once that got me both complaints and a lot of laughter, but it makes me giggle?

CHRISTA - Please.

JAMIE - Which is, I made a joke that, you know, coming out of the autism closet was quite difficult, partly because the rest of the world was really messy and the inside of the autism closet is incredibly tidy.

ROBYN - I wanted to make a joke about closets. I wanted to say that well, I think Jamie might quite like being in a physical closet.

JAMIE - I used to have an office inside a cupboard.

ROBYN - Yeah. Which is like the UK鈥檚 name for a closet.

JAMIE - As I said, RV living, very appealing, very appealing. The company I rented my cupboard from, my office cupboard went bust, so I no longer have an office cupboard. So we鈥檝e mentioned before the various types of closets in our life, and you mentioned that coming out of the autism closet was another experience. Could you tell us about that please?

CHRISTA - Yeah. So, you know, why I say it was really similar to coming out of other closets would be that the experience when you鈥檙e telling people one you have to do it over and over and over again, you never stop coming out of the closet. And some people are going to get it, some people won鈥檛, you鈥檙e going to learn pretty quickly who you can talk to safely and who you鈥檙e going to have to hide around. And there is also the painfully familiar experience of people who are just leaving your life who won鈥檛 be able to accept the new information and kind of become, unfortunately, a hinderance on your continued personal growth. And that鈥檚 something I鈥檝e experienced with every closet I鈥檝e come out of and, you know, it鈥檚 sometimes painful but it鈥檚 also at the same time, you know, you have this freedom to really be your most authentic and true self.

JAMIE - One of the threads that we pick up quite often is the intersection of autonomy identity, and as I get older I have more autonomy and control over my life, therefore I鈥檓 in a better position to be less affected if people choose to leave my life because of being autistic or gay or whatever. Does that make sense, that kind of as you get older the impact of losing a single person gets lessened?

CHRISTA -聽 Oh yeah. Just think if you鈥檙e a child and you鈥檙e in the custody of your parents and your parents aren鈥檛 accepting of you you鈥檙e trapped with them, pretty much.

JAMIE - Yeah. You mentioned the considering of the agenda became more apparent after your autism diagnosis, and I鈥檓 curious about how that came about, but I鈥檓 also curious about where you ended up in that process and kind of what the outcomes were.

CHRISTA - Yeah, and so I guess I鈥檇 say it became too hard to deny after my diagnosis, so for me I was assigned female at birth and that鈥檚 what it鈥檚 felt like, it鈥檚 like an assignment that was given to me that I really had no say in. And I went along with this for a lot of years, performing how I thought I was expected to behave, and I would even present myself in this really hyper, feminine, over the top way because, you know, that鈥檚 what I thought I needed to do to be a girl; I had to wear the makeup, the skirts, the heels, all the things. And it鈥檚 not even really a healthy representation of what it means to be a woman, because looks aren鈥檛 what makes the woman either. But it was just easier for me to present outwardly in a very stereotypical female presentation, even if on some days it felt like an elaborate costume.

And with autistic people, some of us, we may mask and hide our true selves, and I put on that feminine costume as part of my mask as an autistic person. I was playing a role and trying to blend in, just so I could be treated better by people in the world. And, you know, this elaborate mask was part of me behaving in a way that was, quote, socially acceptable, and that was, you know, behaving in an appropriate, quote, appropriate gender roles. And since unmasking as an autistic person over the past four years that piece of my mask has also begun to fall away as I get to know myself all over again and evaluate how I really feel and how I see myself, versus how I think I should act for society鈥檚 benefit instead of my own benefit.

And, you know, I am much happier in life when I don鈥檛 mask and I go along with how I feel instead of just conforming to society鈥檚 norms and doing what I think society expects me to do. And for a lot of years I didn鈥檛 put a name to my feelings about my gender, I was just like, I鈥檓 a me. And then I started to kind of, like, during Corona things are different and so I had more time on my hands and I found myself scrolling through TikTok which is an addicting time suck, and I found other LGBTQIA people on TikTok and started following those, and was like, oh my gosh, there are names for exactly what I experience. And so then I came out and said, okay, 鈥淲ell I鈥檓 nonbinary, if we want to be specific, I identify as gender fluid and there it is, that鈥檚 it.鈥 And I put it out there because I finally had words for it.

[Jingle: 1800 Seconds on Autism. With Robyn Steward and Jamie Knight]

ROBYN - Let鈥檚 also talk to Madge Woollard who鈥檚 with us. Hi, Madge.

MADGE - Hello, lovely to be here. Thank you for inviting me.

ROBYN - Thank you very much for coming. Madge identifies as nonbinary but uses she/her pronouns, and she鈥檚 a piano teacher and she鈥檚 been married to her wife, Jo, for 20 years, and she got her autism diagnosis when she was 44. The reason I wanted to bring Madge into the conversation was because I know that Madge identifies as nonbinary but uses she/her pronouns, and Christa identifies as nonbinary but uses they/them pronouns. And I think that that鈥檚 really interesting and also sort of demonstrates when you鈥檝e met one autistic person you鈥檝e met one autistic person. And so too maybe when you鈥檝e met one nonbinary person you鈥檝e met one nonbinary person. And Madge has been listening to what Christa鈥檚 been saying and I wanted to ask Madge if any of those things sort of resonate with you? If they鈥檙e similar to you or if they鈥檙e different, and how they鈥檙e different?

MADGE - Oh yeah, definitely. I love the concept of auti-gender, I think that鈥檚 brilliant, 鈥榗os I do feel kind of in between the genders. But yeah, as Robyn said, I use she/her pronouns, just for convenience really and because I am happy in my female body, I don鈥檛 want to change anything about my body or have any male aspects, any physical aspects that is. So does that answer your question, Robyn?

ROBYN - Yeah.

CHRISTA - I probably would be comfortable using all of the pronouns, depending on the day. Honestly, that鈥檚 why I say I鈥檓 gender fluid because my feelings about my gender kind of fluctuate. But, you know, if I鈥檓 having a day where I鈥檓 feeling a little bit more towards the more feminine quadrant I might not mind someone using she/her pronouns with me. But the fact that you don鈥檛 know how I鈥檓 feeling that day, if people ask I just say them, it鈥檚 just easier because then you鈥檙e not making those assumptions about me.

I don鈥檛 know why, it鈥檚 just always made me a little bit uncomfortable, people making assumptions about my gender. And I don鈥檛 know, that鈥檚 not something all nonbinary people feel, but it鈥檚 something I do. I鈥檝e heard a couple of other nonbinary people say they feel that too.

MADGE - Well, I think that as long as you鈥檙e talking respectfully to a person and I would hope that people wouldn鈥檛 mind too much if they stumble over the pronouns, but because I use she/her pronouns and I appear quite feminine it鈥檚 not been a problem for me. But I definitely think we should all respect each other鈥檚 pronouns, even if it does make some quite clumsy sentences, 鈥榗os they/them is quite a new thing and so everybody鈥檚 getting used to it. So it is going to take some time.

CHRISTA - Although maybe the word nonbinary is a new thing, having genders that fall outside of the gender binary is not a new concept. Indigenous peoples all over the world have represented and had more than just two genders. It鈥檚 kind of actually a new colonial concept that鈥檚 kind of been brought in more recently where we鈥檝e had kind of the erasure of the genders that fall outside of the standard male female binary, and now more people are starting to talk about this. It鈥檚 a new conversation but it鈥檚 actually not even a new thing or a new concept, people have been nonbinary for a lot of years, we just now have a word to describe it. Like now it鈥檚 like, oh auti-gender, this is a new word, but it鈥檚 probably autistic people throughout the centuries have had this experience it鈥檚 just now there鈥檚 a word for it.

ROBYN - That is such a good point about indigenous people. So this is a question to Christa and Madge, if I could ask. Do you think there are more autistic people when compared to non autistic people that identify across the gender spectrum rather than identifying as a binary gender? And if you do, why do you think that is?

CHRISTA - I definitely think there鈥檚 more, at least people who are autistic, who identify as LGBTQIA+, and I say that because I did a Twitter poll and we had 3,670 autistic people vote, and my question was really simple: Do you consider yourself to be part of the LGBTQIA+? And the percentages were 75.3% yes and 24.7% no. And I鈥檒l disclaimer this, because this is a Twitter poll, it鈥檚 not a scientific poll, but it鈥檚 enough to be interesting. And I would say I think a lot of this goes back to gender being one of those social constructs that, you know, we鈥檙e willing to question, we look at it under a magnifying glass and go, 鈥淥h, some of that鈥檚 new things for me.鈥 And we鈥檙e willing to do that, whereas I think some neurotypical people might be more likely to go along with what they鈥檙e supposed to do and we鈥檙e a little bit more rebellious by nature, some of us.

MADGE - And can I just add to that, that speaking for myself I grew up knowing intrinsically that I was different, I didn鈥檛 know that I was autistic at the time, but I think from there there wasn鈥檛 such a big jump to then coming out as LGBT, because I already knew I was different, if that makes sense?

JAMIE - While we have Madge and Christa on the line it feels like a wonderful opportunity to ask for their advice and their input. So, to both of you, what would you say to other autistic people who are figuring out who they are, or who they鈥檙e attracted to, or whether they even care about this at all?

MADGE - Well can I say, just connect to likeminded people online. There鈥檚 loads of stuff out there, and look on websites, but bona fide ones. For instance, Stonewall has a lot of links that you can follow. I鈥檇 say surround yourself with people who support you in finding yourself and don鈥檛 say things like, 鈥淥h, you鈥檙e autistic, you can鈥檛 know your gender and your sexuality.鈥 Or, 鈥淚t鈥檚 just a phase,鈥 or, 鈥淵ou鈥檝e got it wrong,鈥 you don鈥檛 want those sort of people in your life. So if possible surround yourself with positive people. Yeah, and just don鈥檛 limit yourself. So gender and sexuality can be fluid throughout your life, don鈥檛 feel you have to put yourself in any kind of box and it鈥檚 fine to change. So yeah, that鈥檚 my advice.

JAMIE - Thank you. One of the things that I have come across very often is actually to do with autistic people and dating. I know that a lot of autistic people really struggle with one off dating websites, and at least in my experience, of the autistic people I know the ones who have the strongest relationships, they grew very slowly over time. They may have started as colleagues or friends, and then over, sometimes literally years, it became a boyfriend and girlfriend situation, or similar. What do you both think?

MADGE - Well, I have to say, I actually met my wife through, it was called 鈥楾he Pink Paper鈥, it was 20 years ago, before we really had dating apps and stuff like that, but I put an advert in 鈥楾he Pink Paper鈥 and she replied and that鈥檚 how we met. So you can鈥檛 really say that autistic people don鈥檛 meet that way.

JAMIE - Well, that鈥檚 why I kind of prefixed it with the majority of people that I talk to. I think, I鈥檓 just doing some stats, of the nine people I鈥檝e asked you鈥檙e the first person who鈥檚 found somebody that way. So it鈥檚 just fascinating to me.

MADGE - I just feel it was luck. I mean, I had tried dating things before and never been lucky, so I do feel there鈥檚 a lot of luck in it too.

ROBYN - Thanks so much to Christa and Madge, it鈥檚 been an absolute pleasure to speak to both of you, and thank you very much for listening to 1800 Seconds as well, and for writing to us. And also to the audience, to those of you listening, if any of you have any different thoughts or feelings please don鈥檛 feel like we鈥檙e trying to tell everybody how they should think and feel because everyone is different. But please do email us, stim, that鈥檚 S-T-I-M, stim@bbc.co.uk.

JAMIE - Thank you, it鈥檚 been lovely to have you on.

CHRISTA - Thanks guys.

MADGE - Well thank you very much for having me, it鈥檚 been a pleasure.

ROBYN - Positive flapping over here.

MADGE - Yeah.

CHRISTA - Thanks guys, it鈥檚 been so much fun.

ROBYN - Another episode of 1800 Seconds on Autism is drifting towards its end, although I don鈥檛 know it could be drifting because it鈥檚 a podcast. I guess it鈥檚 drifting past your ears anyway. Before we go we鈥檇 like to encourage you to email us at stim@bbc.co.uk. Stim is spelt, S-T-I-M. We would like to know if you鈥檝e got any thoughts about what鈥檚 been discussed in this podcast and, importantly, what topics would you like to be covered in future podcasts.

JAMIE - If this is the first time you鈥檝e listened you might want to know that there are over 20 more episodes available on 麻豆官网首页入口 Sounds and you can listen to them right now. You can subscribe to the podcast there too so that we appear on your device every time we publish a new show.

ROBYN - We鈥檇 love for more people to know about 1800 Seconds on Autism, so tell your friends, tell your family, and share us around on social media. It helps others who might like us find us. Thanks for listening, goodbye.

JAMIE - Goodbye.

EMMA - Bye.

[Jingle: That was 1800 Seconds on Autism]


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