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Georgia Birchell, whose daughter suffers from cystic fibrosis, spoke to Trish Adudu on the Afternoon Show, as parents of children with cystic fibrosis are facing a wait to see if drugs that could help their treatment are to be classed as "not an acceptable use of NHS resources"

Helen Knight, director of medicines evaluation at NICE said:

"We are evaluating the cost-effectiveness of these cystic fibrosis medicines to ensure that taxpayers continue to get value for money after interim access where further data was collected. The committee want to hear from stakeholders through consultation on important aspects of its draft conclusions. This is so that we have all the relevant information to accurately capture the value of these effective medicines when the committee makes its final decision. We are continuing to work collaboratively with the company, NHS England and other stakeholders including the Cystic Fibrosis Trust to deliver the best outcome both for people with cystic fibrosis and for the wider NHS.

"Existing patients and new patients who are started on treatment while the NICE evaluation is ongoing will continue to have access to the treatments after NICE has issued its final recommendations irrespective of the outcome鈥�

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