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5 Live鈥檚 Steve Crossman spoke to Weekend Breakfast to tell us about the impact that having epilepsy can have on your mental health.

It's after the charity Epilepsy Action carried out research suggesting that 9 out of 10 people with the condition say it has an impact on their mental health.

Steve had his first 鈥減roper鈥� seizure in 2012 and he was diagnosed with epilepsy in 2013.

鈥淚 often say to people, 鈥榚pilepsy is not just seizures鈥�. Seizures are the worst of epilepsy. They鈥檙e awful, they鈥檙e embarrassing and they鈥檙e physically very dangerous, but the mental health impacts on people who have epilepsy, and the families of people who have epilepsy, is awful.鈥�

Epilepsy is one of the most common serious neurological conditions in the world. It affects around 630,000 people in the UK. This means that around 1 in 100 people in the UK have epilepsy. Around 80 people are diagnosed with epilepsy in the UK every day.

Steve spoke to 5 Live breakfast about how his sister with epilepsy died in her sleep from a seizure.

鈥淚f I鈥檓 ever sleeping on my own, I have that fear of dying in my sleep, but equally, a lack of sleep is a major seizure trigger,

鈥淪o you find yourself in this vicious circle of: 鈥榯he thing I need most is sleep but it鈥檚 also the thing I fear the most.鈥�

This clip is originally from 5 Live Breakfast on May 18th 2024.

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